Rare Disease Isn't Rare
Over 30 million Americans are estimated to be living with a rare disease
Rare Disease Isn't Rare
There are over 7000 known ‘rare’ diseases
Rare Disease Isn't Rare
Receiving a rare disease diagnosis can be a multi-year ‘medical odyssey
Firefly Fund: Ending the Diagnostic Odyssey for Rare Disease Patients
Watch our new video capturing the spirit of our mission – inspired by rare disease parents racing to find medicine to save their children – who, in the process, were…Read More
Matthew McConaughey on the importance of the Firefly Fund
Matthew McConaughey shares a note on the Firefly Fund, a nonprofit organization based in Austin, TX. Our mission is to fund and support the research and education necessary to accelerate…Read More
Latest News & Events
OpEd: Proposition 14 Offers Hope Against Dementia for Families
October 10, 2025 | Austin American-Stateman Check out today’s Austin American-Statesman OpEd by Firefly Fund co-founders Pam and Chris Andrews. Proposition 14 is a vote for compassion, innovation and Texas…Read More
Pam & Chris Andrews featured in RARE Revolution
September 8, 2025 | We’re excited to share a new interview with Pam & Chris Andrews in RARE Revolution Magazine. A huge thank you to Nicola Miller for capturing our…Read More